Brooke Eby, a prominent ALS advocate and content creator who used humour and candid storytelling to document life with the progressive neurological disease, died on Thursday, October 1, 2026.
She was 37.
Her death, following a four-year battle with amyotrophic lateral sclerosis (ALS), was acknowledged by the ALS Network, which paid tribute to her contributions to patient advocacy. Salesforce CEO Marc Benioff also expressed his grief over her passing.
Having been diagnosed with ALS at the age of 33 in the year 2022, Eby managed to connect with many people through her social media platforms, where she gave an insight into the hard facts about suffering from ALS without losing her sense of humor.
Apart from raising awareness about ALS, she established ALStogether, an online platform that directly connected those people who were undergoing the same ordeal as her.
How Brooke Eby Turned Her ALS Diagnosis Into Advocacy
Following her diagnosis, Eby chose to share her experience publicly, allowing followers to witness both the serious and unexpectedly funny moments of living with ALS.
Her videos often combined personal updates, humour and frank conversations about the disease. Rather than allowing her diagnosis to define every aspect of her identity, she gave audiences an insight into the person living with it.
Her advocacy also extended beyond social media.
Recognising the importance of peer support, Eby established ALStogether, a Slack-based community where individuals with ALS and their caregivers could exchange information, ask questions, discuss everyday challenges and connect with people who understood their circumstances.
In 2026, Eby worked with the ALS Network to integrate ALStogether into the organisation, a move intended to broaden the community’s reach and strengthen its resources for the future.
Brooke Eby’s Work at Salesforce and ALS Recognition
Eby’s experience also inspired colleagues at Salesforce to establish ALSforce, an employee-led initiative focused on fundraising for medical research.
Salesforce supported her with flexible workplace arrangements and medical benefits, allowing her to remain employed while managing the physical challenges associated with her condition.
In June 2026, the ALS Network recognised her contributions by presenting her with the Dean and Kathleen Rasmussen Advocate of the Year Award.
Reacting to the recognition, Eby captured the spirit of her advocacy in a characteristically candid message.
“I didn’t choose ALS, but I did choose to get loud, and be irreverent about it, so don’t worry, I’m not getting quiet anytime soon! I’m so grateful for this award because it tells me I’m helping in my own weird way.”
ALS Network and Salesforce CEO Marc Benioff Pay Tribute
Following Eby’s death, the ALS Network remembered her not only for increasing public understanding of the disease but also for creating meaningful connections among people affected by it.
Sheri Strahl, president and CEO of the ALS Network, said:
“Brooke changed the way people see ALS, but she also changed the way people living with ALS find and support one another.”
Strahl recalled Eby’s humour, honesty and ability to bring people together during extraordinarily difficult circumstances, adding that her influence would continue through the community she established.
Marc Benioff also shared an emotional tribute on social media, writing:
“I am just devastated to hear of the passing of Brooke Eby @limpbroozkit. Brooke was an amazing warrior with an attitude so positive it could melt a glacier.”
He extended his thoughts to her loved ones during the difficult time.
Brooke Eby’s ALStogether Community to Carry Her Vision Forward
Among Eby’s contributions to ALS advocacy, ALStogether remains a particularly significant part of her work.
While millions encountered her story through social media, the community she founded gave patients and caregivers a dedicated space for conversations that extended beyond public awareness campaigns.
In its October 1 tribute, the ALS Network expressed gratitude for the trust Eby had placed in the organisation when integrating ALStogether earlier this year.
It also committed to preserving the qualities that made the community meaningful while continuing to develop the vision she started.
Eby’s story reached an audience far beyond those personally affected by ALS. For those navigating the disease, however, her work offered something more immediate: an opportunity to speak openly, find support and connect with others who understood their experiences.
She was 37 when she died, but the community she worked to build is set to continue beyond her lifetime.
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